Grandma’s Voce: A Children’s Guide to ALS
Exploring ALS from a child’s perspective
In celebration of a fearless ALS warrior, we are proud to announce the launch of Martha Whitaker’s book, Grandma’s Voice, A Children’s Guide to ALS. Illustrated by her granddaughter Frankie. Published just days before Martha’s passing on March 18, the family hopes to honor her memory by bringing comfort and hope to all families affected by ALS.
Grandma’s Voice is a heartfelt and compassionate children’s book that gently explores the impact of ALS (Amyotrophic Lateral Sclerosis) from a child’s perspective. Through the eyes of a young girl, the story follows her journey of understanding and navigating her Grandma’s diagnosis and the changes it brings. As Grandma’s voice fades and her abilities decline, the child learns about love, resilience, and the importance of cherishing memories. This story offers a sensitive introduction to a difficult topic, showing how families can support each other through hardship and how love endures even when words can no longer be spoken. Filled with tenderness and hope, Grandma’s Voice is an empowering book for young readers and their families to have meaningful conversations about illness, loss, and the bonds that hold us together.
Click the link below to find the book on Amazon. All proceeds with go to ALS United North Carolina.
All Walk Sites for 2025 are Open!
Your Support is Appreciated Year Round
It is never too early to start your team for fall! All walk sites for 2025 are open and ready to accept registrations and donations. You can access all walk sites below!
April 26, 2025: Walk ALS Triangle
May 17, 2025: Walk ALS Down East
June 7, 2025: Walk ALS Winston Salem
October 18, 2025: Walk ALS Greensboro
October 25, 2025: Walk ALS Wilmington
November 1, 2025: Walk ALS Charlotte
Help Us Reach our Spring Fundraising Goal!
Every Dollar Raised Matters in the Fight Against ALS
This Spring, it is our goal to raise $475,000 between the Triangle, Down East, and Winston- Salem WALK ALS events. As a reminder, WALK ALS is the number one way to unite and fundraise for people living with ALS in North Carolina. Each year, fundraising through the Walk supports the ALS community through our Care Services Programs and drives us further toward a cure for ALS. Our Equipment Loan Closet, Care Grant, Support Groups, and more, are all supported through dollars raised at the walk.
You can be a part of the mission by registering to fundraise, donating to a walk, or supporting a walk team.
Celebrate 25 Years of Walking Together!
25 Years of Raising Funds, Creating Community, and Supporting Those Living with ALS
2025 marks 25 years of walking together to cure ALS! This year, we are honoring 25 years of our Walk program. In 25 years of walking together across the state of North Carolina, we have raised critical funds to support those living with ALS and for research to find a cure for ALS. For 25 years, we have walked side by side in solidarity to show that no one is alone in the fight against ALS. Help us honor each of you this year, because without each of you, we would not be able to honor the 25 years that we have walked together!
Were you a part of an original walk team in 2025? Have you walked for 10+, 15+, or 20+ years? Help us showcase your commitment and our shared history together! Email walk@alsnc.org with pictures from the past, anecdotes about your time walking, and any historical knowledge you may have.
All year long, we cannot wait to highlight the individuals, teams, sponsors, and honor those who have passed from ALS, as they are why we are still walking for a cure.
Join Us for Our 6th Annual ALS Top Golf Challenge
A night of supporting a good cause and tournament play
The ALS Topgolf Challenge is on Thursday, May 8th at Topgolf Charlotte. This the perfect was to support the work that we do at ALS United North Carolina AND have a great night out. Sponsorship opportunities and bay spots available for purchase. No golf experience necessary!
If you have any questions, feel free to reach out to Brian Henry at brian@alsnc.org.
To learn more about the ALS Topgolf Challenge and to register to participate, click the button below!
We are Headed to DC!
Advocacy Matters in the Fight Against ALS
At the end of the month, a group of staff, partners, people living with ALS, and their caregivers will be heading to DC. While there, we will meet with our local legislatures and speak to them about the importance of ALS funding and research. Stay up to date on the trip by following our social media!
Joe’s Camp
Free overnight camp for kids, ages 8-13, whose family ahs been touched by ALS
Shop Our NEW Online Store
Click the button below to see what our new online store has to offer. Raise awareness and support our mission at the same time!
Upcoming Events:
April 13, 2025: Tom’s Jam- Playing it Forward for ALS
April 26, 2025: Walk ALS Triangle
May 8, 2025: ALS Topgolf Challenge Charlotte
May 17, 2025: Walk ALS Down East
May 17, 2025: ALSapalooza
June 7, 2025: Walk ALS Winston Salem
October 18, 2025: Walk ALS Greensboro
October 25, 2025: Walk ALS Wilmington
November 1, 2025: Walk ALS Charlotte
Visit our ONLINE CALENDAR for updated community events and support groups. Questions? Email info@alsnc.org.