ALS Community Night at the Carolina Hurricanes

Navigating ALS Symposium

July 19, 2024 Comments Off on Navigating ALS Symposium

ALS United North Carolina will host the Navigating ALS Symposium on Monday, September 30, 2024 at The Conference Center at Guilford Tech Community College (Greensboro Area).   ALS United North Carolina’s Navigating ALS Symposium aims to offer valuable insights for individuals affected by ALS and their broader ALS community, including family caregivers, paid caregivers, friends, or…

ALS Life Expectancy by Age

July 17, 2024 Comments Off on ALS Life Expectancy by Age

Amyotrophic Lateral Sclerosis (ALS) is a progressive neurodegenerative disease that affects motor neurons, leading to muscle weakness and atrophy. While the average life expectancy after diagnosis is 2-5 years, various factors such as age at onset, site of initial symptoms, and genetic profile can influence survival rates. ALS United North Carolina provides comprehensive care services, support, and resources to individuals affected by ALS in North Carolina.

ALS Risk Factors

July 16, 2024 Comments Off on ALS Risk Factors

Amyotrophic Lateral Sclerosis (ALS) is a complex neurodegenerative disease that progressively affects motor neurons, leading to muscle weakness and paralysis. While the exact causes remain unknown, research has identified genetic, environmental, and lifestyle factors that may contribute to ALS development. ALS United North Carolina is dedicated to supporting individuals affected by ALS through comprehensive care services, research initiatives, and advocacy efforts.

How Rare Is ALS?

July 16, 2024 Comments Off on How Rare Is ALS?

Amyotrophic Lateral Sclerosis (ALS) is a complex neurodegenerative disorder that affects motor neurons, leading to progressive muscle weakness and atrophy. While the exact cause remains unknown, genetic, environmental, and lifestyle factors all play a role in ALS development. As the number of ALS cases is projected to increase significantly by 2040, it is crucial to support ongoing research and provide comprehensive care services to those affected by this devastating disease.

AMP ALS and ALS United NC

June 21, 2024 Comments Off on AMP ALS and ALS United NC

ALS United North Carolina is thrilled to announce that as a member of ALS United, we are now supporting the Accelerating Medicines Partnership (AMP) ALS Project, a groundbreaking initiative dedicated to accelerating ALS research and treatment development. Thanks to the generosity of our supporters, we’re taking significant steps towards finding effective treatments for ALS.  “AMP…

7th Annual ALSapalooza Music Festival in Greensboro

May 25, 2023 Comments Off on 7th Annual ALSapalooza Music Festival in Greensboro

The 7th Annual ALSapalooza Music Festival in Greensboro was a HUGE success! We are so grateful to everyone who participated, bid on the awesome silent auction items and especially the dedicated committee of volunteers who tirelessly plan this incredible event each year. Thank you also to Bull City Ciderworks, musicians Eric Hunsucker, Jack Gorham and…

Mining Data to Help Build a World Without ALS

December 20, 2022 Comments Off on Mining Data to Help Build a World Without ALS

Originally posted on als.org Big data, by definition, refers to extremely large data sets that can be analyzed to reveal patterns, trends, and associations, especially relating to human behavior and interactions. For the ALS community, big data has the potential to expedite the work to make ALS a livable disease while ultimately finding a path…

North Carolina man releases cookbook of recipes made while battling ALS

December 13, 2022 Comments Off on North Carolina man releases cookbook of recipes made while battling ALS

From CBS17. Orginal post found here. HIGH POINT, N.C. (WGHP) — When Greg Groce was diagnosed with ALS, he had to quit working immediately.  He decided to fill his days cooking and sharing recipes on social media. He created a page on Facebook called Back40Cookin’.  Hundreds of people started following it, and restaurants and chefs started reaching…

Greensboro Walk to Defeat ALS Raises Over $100,000

November 12, 2022 Comments Off on Greensboro Walk to Defeat ALS Raises Over $100,000

Thank you Greensboro for an amazing 2022 Walk to Defeat ALS event. Donations have topped $100,000. It’s been since Spring 2019 since we have held an in-person event there and can’t wait to come back next year. Donation site remains open for fall walks till Dec 31st at walk.alsnc.org