March 2025 Newsletter

March 6, 2025 Comments Off on March 2025 Newsletter

Celebrate 25 Years of Walking Together25 Years of Raising Funds, Creating Community, and Supporting Those Living with ALS 2025 marks 25 years of walking together to cure ALS! This year, we are honoring 25 years of our Walk program. In 25 years of walking together across the state of North Carolina, we have raised critical…

Leadership Change Announced at ALS United North Carolina

March 4, 2025 Comments Off on Leadership Change Announced at ALS United North Carolina

RALEIGH: The Board of Directors of ALS United NC announced today that Dave Shore has departed from his role as CEO of ALS United NC, effective February 25. The Board expresses appreciation for his service to our organization and wishes him well in his future endeavors. Anne Hurd has been appointed as interim CEO. Ms.…

An Interview with Joanna Nunez, MSW, LCAS, LCSW

March 3, 2025 Comments Off on An Interview with Joanna Nunez, MSW, LCAS, LCSW

March is Social Work Month! We are grateful to have four social workers on staff everyday, but this month we are pleased to celebrate them a little extra. Thank you, Alex, Alicia, Lily, and Joanna for the way that you support the North Carolina ALS community! Today, we are spending one-on-one time with Joanna Nunez.…

ALS United North Carolina’s Response to Proposed NIH Funding Cuts

February 25, 2025 Comments Off on ALS United North Carolina’s Response to Proposed NIH Funding Cuts

ALS United North Carolina is in strong opposition to all of the proposed budget cuts at the National Institutes of Health (NIH) that could impact ALS research. ALS (amyotrophic lateral sclerosis) is a devastating and fatal disease with no cure. Continued funding at every level is essential to advancing research, developing treatments, and ultimately finding…

15 ALS Nonprofits Collaborate to Form ALS United: A New Era of Innovation and Impact

February 24, 2025 Comments Off on 15 ALS Nonprofits Collaborate to Form ALS United: A New Era of Innovation and Impact

Feb. 7, 2025 /PRNewswire/ – Following a comprehensive planning process, 15 independent nonprofit organizations from around the country have formalized ALS United, an innovative partnership dedicated to serving the ALS community. This new nonprofit membership organization is committed to serving the ALS community in a collaborative approach by providing comprehensive local care and support to…

February Care Services Connection

February 24, 2025 Comments Off on February Care Services Connection

A Message From Our VP of Care Services & Advocacy, Kara Cantoni Learn more about the support available to you through ALS United NC Dear ALS Community, We are thrilled to introduce the Care Connection Newsletter, brought to you by the ALS United North Carolina Care Services team. This bi-monthly newsletter is created with you in…

February 2025 Newsletter

February 10, 2025 Comments Off on February 2025 Newsletter

Honoring Evelyn Blanton At our Drive Out ALS event on January 29th, Amy Lynn Clark, Director of Development for the Greater Triangle Area, presented the 2nd Annual Chris Combs Courage and Community Award to Evelyn Blanton and family for Evelyn’s dedication to brining awareness to ALS. Evelyn is a passionate advocate for ALS in honor of…

ALS and Intimacy

February 10, 2025 Comments Off on ALS and Intimacy

Just in time for Valentine’s Day, CSC Joanna Nunez discusses ALS and Intimacy.   Joanna gave this presentation before a live audience in 2022 at the International MND Alliance Professionals Forum, and for several local ALS organizations.  In her 2025 presentation, she introduces Social Media’s influence on ALS Awareness and physical intimacy, as well as the…

December Care Services Connection

February 4, 2025 Comments Off on December Care Services Connection

A Message From Our VP of Care Services & Advocacy, Kara Cantoni Learn more about the support available to you through ALS United NC Dear ALS Community, We are thrilled to introduce the Care Connection Newsletter, brought to you by the ALS United North Carolina Care Services team. This bi-monthly newsletter is created with you…

Sparking Curiosity in 10th Graders

January 6, 2025 Comments Off on Sparking Curiosity in 10th Graders

Before the holiday break was in full swing, I had the opportunity to give a virtual ALS in-service to a 10th-grade class at Liberty Preparatory Christian Academy. Kelly Lemmon, an English teacher, reached out to share that her class had been reading the empowering memoir I’ll Push You.  This wonderful read is about friendship and…