You are not alone.
Receiving a diagnosis of ALS is challenging and overwhelming. There is so much to know, a great deal to consider, and typically a host of questions. While no two people with ALS are alike or will experience the condition the same way, there is a great deal of collective knowledge and wisdom available from health care providers, people with ALS, family members and caregivers.
Recommended Steps After Diagnosis
Register with Our Care Team
Real people providing real help.
This is where you begin your personalized relationship with one of our highly trained ALS Care Services professionals. We will walk this journey with you and your loved ones. You will work with a real person in your community. A compassionate professional that you get to know, who provides you with guidance and tangible support. We are a nonprofit dedicated to you. We do not charge for any of our services.
Register with the National ALS Registry
The National ALS Registry may be the single largest ALS research project ever created and is designed to identify ALS cases throughout the United States. Most important, the Registry is collecting critical information about the disease that will improve care for people with ALS and help us learn what causes the disease and how it can be treated.
Learn About Insurance, Medicare and Veteran Coverage
It is important to learn about your insurance coverage. You may want to contact your medical insurance provider and request that you be assigned a case manager to be your primary point of contact.
If you served in the military, contact the Department of Veteran Affairs (800-827-1000) about eligibility for health, vocational rehabilitation and disability programs and services.