Newly Diagnosed

You are not alone.

Receiving a diagnosis of ALS is challenging and overwhelming. There is so much to know, a great deal to consider, and typically a host of questions. While no two people with ALS are alike or will experience the condition the same way, there is a great deal of collective knowledge and wisdom available from health care providers, people with ALS, family members and caregivers.

Recommended Steps After Diagnosis

Register with Our Care Team

Real people providing real help.
This is where you begin your personalized relationship with one of our highly trained ALS Care Services professionals. We will walk this journey with you and your loved ones. You will work with a real person in your community. A compassionate professional that you get to know, who provides you with guidance and tangible support. We are a nonprofit dedicated to you. We do not charge for any of our services.

Learn more about our Care Services here.

Meet our Care Services Team here.

Find an ALS Multidisciplinary Clinic

ALS United North Carolina collaborates with some of the best ALS physicians and clinics across North Carolina to help ensure that people living with ALS have access to specialized care, based on best practices.

Learn More About ALS

Watch our series of educational videos and webinars to learn more about the disease, living with ALS, and treatment options.

Register with the National ALS Registry

The National ALS Registry may be the single largest ALS research project ever created and is designed to identify ALS cases throughout the United States. Most important, the Registry is collecting critical information about the disease that will improve care for people with ALS and help us learn what causes the disease and how it can be treated.

Learn About Insurance, Medicare and Veteran Coverage

It is important to learn about your insurance coverage. You may want to contact your medical insurance provider and request that you be assigned a case manager to be your primary point of contact.

If you served in the military, contact the Department of Veteran Affairs (800-827-1000) about eligibility for health, vocational rehabilitation and disability programs and services.

Join a Support Group

Support Groups provide opportunities for people living with ALS and their loved ones to share their personal experiences and learn more about strategies for preserving independence and maximizing quality of life.

Additional Resources