You are not alone.
Receiving a diagnosis of ALS is challenging and overwhelming. There is so much to know, a great deal to consider, and typically a host of questions. While no two people with ALS are alike or will experience the condition the same way, there is a great deal of collective knowledge and wisdom available from health care providers, people with ALS, family members and caregivers.
Recommended Steps After Diagnosis
Find a Certified Center or Clinic
The ALS Association collaborates with some of the best ALS physicians and clinics across the United States to help ensure that people living with ALS have access to specialized care, based on best practices. The ALS Association’s Certified Treatment Centers of Excellence and Recognized Treatment Centers provide compassionate care in a supportive, family-oriented atmosphere.
Register with the National ALS Registry
The National ALS Registry may be the single largest ALS research project ever created and is designed to identify ALS cases throughout the United States. Most important, the Registry is collecting critical information about the disease that will improve care for people with ALS and help us learn what causes the disease and how it can be treated.
Join a Support Group
Support Groups provide opportunities for people living with ALS and their loved ones to share their personal experiences and learn more about strategies for preserving independence and maximizing quality of life. All North Carolina Chapter Support Groups are facilitated by our professional Care Managers with extensive experience in ALS.