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Join a Support Group

ALS United North Carolina holds Virtual Support Groups for persons with ALS, caregivers, family, and friends. Meetings provide information on topics related to ALS and encourage connection, fostering sharing and the creation of an informal support network.

PLEASE NOTE:
There may be months when days/times need to be changed. Please check our "EVENTS CALENDAR" for exact dates/times in case of a change.

See below for other Supportive Care available and to complete the Peer Connection form.

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Virtual Support Groups

ALS Information Support Groups

Focus is on those interested in learning and discussing topics related to ALS. Discussion/participation by attendees is encouraged, or you can just join to learn something new.

 3rd Wednesday of every month, 12 - 1 pm

Call In Information:
Join Zoom Meeting

https://bit.ly/ALSInformationGroup

Meeting ID: 954 4703 2624
Passcode: Info123
or Dial using phone only: 309-205-3325 
Meeting ID: 954 4703 2624   8390685

Facilitator: Lily Cola, LCSW-A
Email: lcola@alsnc.org
Phone: 919-390-0120

 

Caregiver Chat Time with Meg

Focus is for Caregivers of persons with ALS to connect, chat, and learn of resources. This group is for caregivers only.

2nd Thursday of every month, 7 - 8 pm
3rd Thursday of every month, 7 - 8 pm  

Call In Information: 
Join Zoom Meeting:
https://bit.ly/ALSCaregiverGroup

Meeting ID: 932 5042 9625
Passcode: Care123
Or Dial using phone only: 305-224-1968
Meeting ID: 932 5042 9625 Passcode: 5100837

Facilitator: Meg Rayder, MSW
Contact: mwhitaker@alsnc.org

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Bereavement Support Group

Support for those who have lost loved ones to ALS and the opportunity to meet others traveling down the same journey of grief.

3rd Wednesday of every OTHER month, 7:00 - 8:00 pm

Meeting months: Jan, Mar, May, Jul, Sep, Nov

Call In Information:
Join Zoom Meeting
https://bit.ly/ALSBereavementGroup

Meeting ID: 983 6437 0040

Passcode: Love123
Or Dial In 646-558-8656
Meeting ID: 983 6437 0040   Passcode: 5792100

Facilitator: Certified Grief Counselor
Rachelle Flowers / rflowers@alsnc.org

 

ALS Genetic Support Group

The focus is to discuss and learn information regarding Familial ALS with a genetic counselor.

**This Meeting meets Quarterly**

4th Monday in March, June, September, and December

6:30 - 7:30 pm.

Call-in information:
Join Zoom Meeting
https://bit.ly/ALSGeneticsGroup

Meeting ID: 940 1442 3267
Passcode: Gene123

Or Dial In using phone only: 360-209-5623
Meeting ID: 940 1442 3267
Passcode: 9157019

Facilitator:
Lauren Baldwin, MS, CGC
Contact: lbaldwin@alsnc.org

Families Navigating ALS Consultation

Lily Cola, MSW, offers one-on-one consultations to help families explain ALS to children or young loved ones and can provide support while navigating this transition. Reach out for personalized guidance and support to foster understanding and resilience in your family. Call or email to schedule. Email: lcola@alsnc.org Phone: 919-390-0120

One-on-One Virtual Support Meeting

One-on-one support is available for individuals who prefer a private setting. pALS and cALS can connect with their
Care Services Coordinator by phone or virtually to provide a safe, confidential space to talk openly and receive guidance
throughout the ALS journey. Appointments available upon request. To schedule a one-on-one appointment,
please call or email your Care Services Coordinator.

Peer Connection

Living with ALS—or caring for someone with ALS—can sometimes feel isolating. We offer people living with ALS (pALS) and caregivers (cALS) the opportunity to connect with others in their local community who are on a similar journey. If interested in connecting with other pALS (person with ALS) or cALS (caregiver for person with ALS) in your community, complete the form below. Connections depend on amount of interest received. You will be notified by your Care Services Coordinator if there is an opportunity to be connected through email introduction. Once submitted, your Care Services Coordinator will reach out to individuals in the surrounding area and help facilitate an email introduction between participants, based on shared interests and preferences.

This field is for validation purposes and should be left unchanged.
Name of person interested(Required)
Address(Required)
Are you interested in connecting with:(Required)
Please choose pALS preferance below. (check as many that apply)(Required)
Please use caregiver preferances below (check as many that apply)
By checking below you give permission to ALS United NC to use your name and email for connection puposes and understand that once connection is made, ALS United NC is no longer involved with connection.(Required)

Why Come to ALS Support Groups?

Support groups are here for you—people living with ALS and your loved ones—to connect, share, and find support within the ALS community. These groups offer:

  • Connection & Shared Experience
    Learn from others, share practical tips, and explore ways to improve daily life.
  • Emotional Support
    A safe space to express feelings and connect with others who truly understand.
  • Education & Resources
    Gain helpful information on care, therapies, and coping strategies from experts and peers.
  • Inspiration & Hope
    See how others continue to live meaningful lives while navigating ALS.

Support groups help you stay informed, feel supported, and remain connected.
They’re here for you—your experience, your voice, your community.

Questions about support groups? Please contact the group facilitator below for the group which interests you or Claudia Beirne at claudia@alsnc.org or 919-390-0125.

Resources