Privacy Policy

/Privacy Policy

This is the website of ALS United North Carolina,

Our postal address is:
ALS United North Carolina
4 N. Blount Ste.
Suite 200
Raleigh, NC 27601

You can contact us via email at or by phone at 919-755-9001.

We provide this notice to explain our online information practices. By visiting our site at, you are accepting the practices described in this privacy notice.

Privacy Policy Statement
ALS United North Carolina is committed to protecting the privacy of its users and donors. Information gathered by ALS United North Carolina is used to monitor the effectiveness of our site and respond to your questions and requests. ALS United North Carolina will never sell or share donor information.

Aggregate Information
When you visit our website, our server automatically logs (records) the domain name and standard anonymous information about the operating system and web browser you are using, as provided by your web browser. This automatically collected information is used for statistical purposes to help us manage our site and better serve the community, but it does not identify you in any way.

Identifiable Information

  • Donors
    ALS United North Carolina respects the privacy of its financial supporters. The organization does not rent or exchange its donor list with any other organization. ALS United North Carolina will never sell or share donor information. This policy pertains to both online and offline donors.
  • Patient & Family Information
    Patient and family information, including, but not limited to, name, physical address, email address, age, and telephone number, is confidential and will only be shared with official ALS patient care organizations with written permission from a patient or their designee. Under no circumstances, will ALS United North Carolina provide or sell any of this information to outside entities, except where required by law and then only after providing notice to the patient and/or designee/caretaker. ALS United North Carolina will, upon request of a patient or their designee/caretaker, serve as an intermediary between patients and outside entities where deemed appropriate.
  • Mobile Data Information/Mobile Data Privacy
    No mobile information will be shared with third parties/affiliates for marketing/promotional purposes. All the above categories exclude text messaging originator opt-in data and consent; this information will not be shared with any third parties.

ALS United North Carolina may provide to government agencies and outside entities aggregate data on ALS including incidence, prevalence, and number of patients served by the organization.

Data Security Statement
The security of your personal information is very important to us and we are committed to protecting the information we collect. uses firewalls and has security measures in place at its physical facilities to protect against the loss, misuse, or alteration of information that we have collected from you on our website. This includes the use of Secure Sockets Layer (SSL) for processing contributions securely. SSL is the proven standard for secure web messaging transactions.

ALS United North Carolina reserves the right to change this policy at any time. Our privacy policy will be kept up-to-date and clearly posted on our website.