Our Impact in 2022
Everything we do - from funding critical ALS research, to providing excellent care at our multidisciplinary clinics, to providing financial assistance through our grant program relies on the donations of our generous supporters. We are committed to efficiency and transparency, and to maintaining our impact in North Carolina as we strive to create a world without ALS.
People with ALS Served
Care Services Successes
As we look back on 2022, The ALS Association North Carolina Chapter continued the programs and services that fit our patient community while also exploring opportunities to expand. We provided continuity of care to 911 people with ALS through ongoing support, equipment loan programs, multidisciplinary treatment options, financial care grants, and support group meetings.
North Carolina Multidisciplinary ALS Clinics
In 2022, over 1000 patients in North Carolina utilized an NC multi-disciplinary clinic (including telemedicine visits)
Patients Utilized an NC Multidisciplinary Clinic
Pieces of Equipment Delivered
We partnered with vendors to deliver close to 501 pieces of Durable Medical Equipment and Assistive Communication Equipment to patients served within our North Carolina community.
With your support, The ALS Association’s TREAT ALS™ research program fuels global collaboration to expedite the discovery of treatments and a cure for amyotrophic lateral sclerosis (ALS).
Everything we do supports our mission of finding treatments and a cure for ALS, which is why it is so critical to fund outstanding ALS research. We have the premier ALS research program in the world.
Our approach is simple and has led to some of the biggest research discoveries in the history of ALS. We fund the best, most promising research around the globe, while inspiring... and initiating innovative partnerships across all sectors – government, industry, academia, and other nonprofit organizations – while funding bright, young scientists to spur innovation.
Thanks to the donations raised during the ALS Ice Bucket Challenge, we are now spending three times more than on ALS research than before summer 2014.
Invested in ALS Research since the Ice Bucket Challenge
Will be invested over 5 years for ALS research
While the pandemic continued throughout 2021, your advocacy for those living with ALS produced some incredible wins, both on the federal and state level. Accelerating Access to Critical Therapies for ALS Act - Thanks to the incredible advocacy of the ALS community, the Accelerating Access to Critical Therapies (ACT) for ALS Act passed Congress and was signed into law by President Biden on December 23, 2021. This act authorizes $100M over five years for ALS research and creates the first federal entity explicitly charged with developing treatments for neurodegenerative diseases. Specifically, the bill would create a new:
- Framework for delivering experimental therapies to people with ALS
- Research grant program at the FDA for rare neurodegenerative diseases
- Collaborative for Rare Neurodegenerative Diseases at the Department of Health and Human Services (HHS) to coordinate federal efforts on developing and approving treatments and cures.
Where Are Your Donations Going?
.82 Cents of Every Dollar Raised Goes to Our Programs
Committed to Research since Ice Bucket Challenge
Active research projects worldwide
Patients received care and clinical management of ALS through one of our 6 multidisciplinary centers
Pieces of Durable Medical Equipment Loaned to Patients throughout North Carolina
monetary grants to cover 3300 hours of respite care and additional expenses such as prescription co-pays, and more
Support Group Meetings held