Our Impact

Through motivated, inspired, and challenging work, we seek to empower those living with ALS in North Carolina. 

Our ALS United North Carolina Staff, Board of Directors, Partners and Volunteers have been, and always will be, committed to connecting our local ALS community so that no one faces an ALS journey alone.  We are privileged and proud to serve our community. 

911

People with ALS Served

Care Services Successes

As we look back on 2022, ALS United North Carolina continued the programs and services that fit our patient community while also exploring opportunities to expand. We provided continuity of care to 911 people with ALS through ongoing support, equipment loan programs, multidisciplinary treatment options, financial care grants, and support group meetings. 

North Carolina Multidisciplinary ALS Clinics

In 2022, over 1000 patients in North Carolina utilized an NC multi-disciplinary clinic (including telemedicine visits) 

1K+

Patients Utilized an NC Multidisciplinary Clinic

501

Pieces of Equipment Delivered

Equipment Loans

We partnered with vendors to deliver close to 501 pieces of Durable Medical Equipment and Assistive Communication Equipment to patients served within our North Carolina community. 

Advocacy Wins

While the pandemic continued throughout 2021, your advocacy for those living with ALS produced some incredible wins, both on the federal and state level. Accelerating Access to Critical Therapies for ALS Act - Thanks to the incredible advocacy of the ALS community, the Accelerating Access to Critical Therapies (ACT) for ALS Act passed Congress and was signed into law by President Biden on December 23, 2021. This act authorizes $100M over five years for ALS research and creates the first federal entity explicitly charged with developing treatments for neurodegenerative diseases. Specifically, the bill would create a new:

  • Framework for delivering experimental therapies to people with ALS
  • Research grant program at the FDA for rare neurodegenerative diseases
  • Collaborative for Rare Neurodegenerative Diseases at the Department of Health and Human Services (HHS) to coordinate federal efforts on developing and approving treatments and cures.

$100M

Will be invested over 5 years for ALS research

Research Advancements

Everything we do supports our mission of finding treatments and a cure for ALS, which is why it is so critical to fund outstanding ALS research. 

We will continue to fund the best, most promising research around the globe, identifying partnerships in research to get one step closer to finding a cure for ALS.

Where Are Your Donations Going?

3300

Hours of respite care for caregivers funded

911

Patients received care and clinical management of ALS through one of our 6 multidisciplinary centers

309

Monetary grants to cover expenses such as prescription co-pays, communication devices and more

104

Support Group Meetings held