What We Do

ALS United North Carolina shares the hopes of people everywhere that Amyotrophic Lateral Sclerosis will one day be a disease of the past, conquered by the dedication of thousands who have worked ceaselessly to understand and eradicate this perplexing killer.

Until that day comes, our organization relentlessly pursues the mission to help people living with ALS and to leave no stone unturned in the search for a cure for this progressive neurodegenerative disease.

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Care Services

We embrace thousands of those stricken with the disease with the world's most comprehensive program of care and services. ALS United North Carolina is committed to enhancing those living with ALS quality of life through the many cost free programs we offer to individuals and families affected by ALS. We understand the value of those with the disease being able to communicate, function safely in their home, and travel to ALS Clinics for comprehensive evaluation and treatment. Our programs are designed to meet these essential care needs as well as the emotional needs of those in our community and caregivers.

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ALS United North Carolina focuses on state and federal advocacy for research, health & long-term care, and caregiver support. The ALS Community's involvement in advocacy has led to increased federal funding for ALS research at the NIH and federal funding for ALS research through the Department of Defense.


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Collaborative efforts have led to some of the most promising and significant advances in the field.  Thanks to the donations raised during the ALS Ice Bucket Challenge, ALS research continues to advance at a more rapid pace.

Collaboration is the cornerstone of our research program. We partner with academia, industry, government, and other nonprofit organizations and lead by spurring long-lasting collaborations among researchers across all sectors, leading to globally shared data, protocols, and research samples to accelerate research progress.

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Public Education & Awareness

Through public outreach, media relations, social media and the Internet, ALS United North Carolina continually raises awareness about ALS and the search for a cure. We continue to build partnerships state-wide to further expand awareness and support of ALS issues through relationships with sponsors and other organizations such as the Carolina Hurricanes, Minor League Baseball, NFL Alumni and through effective interaction with the news media.